Saturday, January 9, 2010

I Will Be Here

Thinking of my blessings today! Thankful for that special someone who is always here, my eternal companion Dave!




IC, my Invisible Illness brings with it a great amount of stress and worry from my family. Being the one with the illness, I have been so busy trying to work through the changes and all the pain... It would be easy to lose sight of those who love and care about me. I try very hard to notice and thank them on a daily basis, and I always pray for them.

I had a wonderful 1st physical therapy treatment on Thursday. Dave went with me, as he usually does, but did not stay in the room while I was treated. My physical therapist, Lori, told me it would be important that my "significant other" learn the treatment techniques, as these techniques will need to be done on me several times a day over the next few months. She asked if I thought Dave would come back and join us in the treatment room. I told her this is hard for him... and she said, "Yes, I noticed the pain on his face, he doesn't like to see you in this kind of pain and he not be able to help you. "

He did not come back into the room. I hope over time, he will learn the techniques as I need his help. I can't get better without his help. Dave asked Lori if it would be possible for me to treat myself. Lori said it is not possible to do these techniques on myself.

When we marry we become companions. Dave has been with me so many other ways along this life journey, I am so grateful for him. I don't know what I would do without him in my life. He has been amazing over the past several years as we've tried to figure this illness out, prior to the diagnosis and after.

I love you Dave, thank you for being here with me. I pray for you as you pray for me. There is hope. Hold on.... and let's both always be here...

Wednesday, January 6, 2010

Mother In Law's Aren't All Bad: Note from Chrissy


Chrissy Emailed me this Note, and I want to keep it forever! I love you too Chrissy!!!!!!


"Just wanted to tell you how greatful i am for you. You will never know how much you mean to me. I love having a mother-in-law that i can talk to and laugh with. You are a perfect example of how people should treat everyone. You are a true daughter of our Heavenly Father and you can see it in your eyes that you hold that very dearly. And i am glad that my kids get to see that and know that their gramma loves our Heavenly Father. I wish you the best over this season and HOPE, HOPE, HOPE you have as much pain free minutes, hours, days as possible. I love you like you as if you were my real mom and think of you that way. Don't ever change, you are perfect the way you are.(Even when your crazy!!!)" Love Chrissy

I try to be as positive as I can every day. I am lucky to have so many special people in my life! This is a very challenging time for me... many changes... LOTS OF PAIN... sleepless nights ... EXHAUSTION.... Notes like this one keep me hanging on as I walk so closely to the edge!
Oh... and HUGS help too!
jackie